Overview
Approximately 3,300 children are diagnosed with leukemia in the United States each year. The illness and its treatment can have a devastating effect on family, friends, schoolmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time. Author Nancy Keene provides parents and family members with: • Updates on treatment, including stem cell transplants, information about tailoring drugs dosages to children’s genetic profiles, and new methods for dealing with side effects. • Practical advice on how to cope with medical procedures, hospitalization, school, family, and financial issues. • Suggestion son ways to form a partnership with the medical team. • Stories from family members who have coped with leukemia and its treatments. • Updated resources for medical information, emotional support, and financial assistance. • A pull out medical record-keeper. Parents who read this book will find understandable medical infomation, obtain advice that eases their daily life, and feel empowered to be strong advocates for their child.
Reviews
"Keene has written a comprehensive handbook to serve as a road map for others, from diagnosis through treatment." —Library Journal, *starred* review and chosen for the prestigious Nursing Your Children's Health Collection
"This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options from chemotherapy to bone marrow transplantation, but also day-to-day practical advice." —F. Leonard Johnson, M.D. Chief, Division of Pediatric Hematology/Oncology Oregon Health Sciences University
"What's compelling about Childhood Leukemia: A Guide for Families, Friends, and Caregivers is the amount of useful medical information and practical advice it contains…. As the mother of a two-time survivor of ALL-yes it can recur, in my daughter's case after a 14-year remission-I can vouch that the road to cure is bumpy, filled with life-threatening complications and requiring aggressive in-hospital care. Keene spells it all out…. A valuable resource to help parents and children regain their equilibrium after diagnosis and during the two to three years of treatment." —Patricia Dane Rogers, The Washington Post
"This wonderful book is an informative addition to the House library, and one we will recommend wholeheartedly. By providing this resource to the children and families staying here, you enable them to find a bit of hope and peace of mind in a time of great difficulty and confusion." —Peggy Enright, House Director, Boston Ronald McDonald House
"Of all the many kinds of help we had (and we had lots) Childhood Leukemia was the single best gift we received. It was the gift of knowledge, so we could ask intelligent questions about our daughter's care. It was the gift of security, allowing us to foresee much of what was coming, and giving us the tools we needed to cope. And it was the gift of hope, for we could see that many children do, indeed, get through this trying time, and come through the grueling treatment intact." —Kim Warren, parent of a child with leukemia (one of dozens of thank-you letters sent to the author)
"Faced with a diagnosis of a life threatening disease, parents of a newly diagnosed child with leukemia often struggle to understand the facts and explanations of the disease and treatment they face, while at the same time dealing with overwhelming feelings of fear, confusion and isolation. The great value of Nancy Keene's exceptional book is that it puts the facts and explanations into understandable terms while acknowledging and dealing with the emotional aspects as only parents who have had similar experience, can. This combination of science, clinical facts and humanism is a potent weapon for both new and seasoned parents who must travel this demanding path. It is also of enormous value to those of us who try to help parents understand and cope as our professional obligation." —Mark L. Greenberg, MD Professor of Paediatrics and Surgery, University of Toronto Senior Staff Oncologist, Hospital for Sick Children Chair, Paediatric Oncology Group of Ontario (POGO)
"Childhood Leukemia is the very best book on the subject that I have read, and I've read everything I could put my hands on. It is absolutely correct in the subject matter it covers and the approach. I wish someone had put a copy in my hands the day after the diagnosis. It literally will be a life-saving book." —Rebecca Laird, parent (one of dozens of thank-you letters sent to the author)
"This book is an invaluable reference for children, their family and their health care providers. It provides important information written in ways families can understand. Ms. Keene presents difficult and sometimes troubling information in a sensitive and balanced manner. I highly recommend it for patients, family members and health care providers." —Debra L. Friedman, MD Director, Division of Hematology-Oncology E. Bronson Ingram Chair in Pediatric Oncology Vanderbilt Children's Hospital
Author Biography
Nancy Keene, a well-known writer and advocate for children with cancer, is the parent of a 22-year survivor of high-risk acute lymphoblastic leukemia. She is one of the founders of the nonprofit Childhood Cancer Guides, and she has written many books for families of children with cancer, including Childhood Cancer Survivors; Your Child in the Hospital; and Chemo, Craziness, and Comfort. She co-authored Childhood Cancer: A Parent's Guide to Solid Tumor Cancers and edited Educating the Child with Cancer. She served as chair of the Patient Advocacy Committees of both the Children's Cancer Group (CCG) and Children's Oncology Group (COG)-- consortiums of researchers from more than 300 institutions that treat children with cancer. Ms. Keene has been interviewed on National Public Radio about childhood cancer survivorship, frequently speaks to professional and parent groups, and has participated in online pediatric cancer support groups (www.acor.org) since they began in 1996.
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